Data sharing on a large scale is integral to emerging national initiatives such as learning health systems and precision medicine. Realizing the vision of learning health systems, “in which knowledge generation is so embedded into the core of the practice of medicine that it is a natural outgrowth and product of the healthcare delivery process and leads to continual improvement in care” requires a “trust fabric” to integrate policy and practice in health care, public health, and research. However, as increased data sharing stretches the currently disjointed regulatory and policy environment, the texture and resilience of this trust fabric will be challenged in its capacity to protect the public and its vulnerable populations, and to assure data will be used in ways that reflect societal values. What will it take to trust the health system with all that information? This presentation will examine these tensions and dynamics. Based on preliminary data from the clinic and the community, Dr. Platt will discuss a proposed a framework for trust to guide decision-making for local, state, and national learning health systems.
Join us for Dr. Jodyn Platt’s lecture on Wednesday, November 9, 2016 from noon until 1 pm in person or online.
Jodyn Platt, MPH, PhD, is an Assistant Professor trained in medical sociology and health policy. Her research currently focuses on informed consent in cancer and genomic studies, and the Ethical, Legal, and Social Implications (ELSI) of public health genetics, newborn screening, and learning health systems. She is interested in understanding what makes learning health systems trusted and the pathways for achieving and sustaining trust through community engagement using qualitative and survey methods.
In person: This lecture will take place in C102 East Fee Hall on MSU’s East Lansing campus. Feel free to bring your lunch! Beverages and light snacks will be provided.
Online: Here are some instructions for your first time joining the webinar, or if you have attended or viewed them before, go to the meeting!
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